Posted by: Conky | February 21, 2012

Celiac Disease – Gluten Free Diet Essential

Based on the accepted state of knowledge about Celiac disease, to avoid the health issues that can result from the condition a gluten-free diet is essential. I am a “Celiac”. (see earlier Blog). Discovery of my problem resulted from doctor pursuing a significant iron deficiency reported from a blood test. Due to the disease my body had stopped absorbing iron and my “iron tank” was near empty. No symptoms were evident to me and I felt well.

However, upon the diagnosis being confirmed, and receiving a strong directive from my physician, I immediately commenced a gluten-free diet. That was about two and a half years ago. Within a year of the diagnosis my iron levels returned to the normal range and have continued to increase since.

This post was written to highlight an article published on the web today. Apparently a gluten-free diet has become fashionable. If you are a celiac do not abandon the gluten-free diet: it is anything but fashionable for us!!!!

Serendipity is great happenstance. Only a few days after posting  ”Living Alone with Pets and Telecare Service” I stumbled upon a US based website and associated service that informs you about how to create a legally enforceable plan to protect your beloved pet.

As stated on the website PetTrustLawyer.com, Rachel Hirschfeld, Attorney-At Law,  ”is a nationally renowned expert in estate planning and the preeminent authority on continuing protection of all animals. Her mission is to make sure that every pet that has found a loving home is guaranteed a secure future”.

As noted in the “Living Alone with Pets …” post we have learned that a number of our clients subscribe to our Personal Telecare Service specifically because of their concern for the welfare of their pets should they not be able to care for their pets themselves. Our service attends to the short-term welfare of the pets but you may find it useful to learn about how you can make sure your pet is in good hands for the longer term.

Visit the Pet Trust Lawyer website and learn that long-term care for your pet is within your reach today. (Recommended)

Posted by: Conky | February 2, 2012

Sentry Telecare Adds Self Check-in Service

Based on client and potential client demand we have added an important new feature to the Sentry Telecare Telephone and Medical Alert Service offering.

We are very excited about being able to provide this convenient enhancement to our service.

Please read the following News Release

NEWS RELEASE  

For Immediate Release

  Sentry Telecare Adds New Check-in Features to Personal Telecare Service

Calgary, Alberta, February 2, 2012 – Sentry Telecare today announced that it is pleased to introduce the addition of “Self Check-in” and “Early Check-in” to its Personal Telecare Service offering.

The Self Check-in feature allows people on the go to be able to check-in, using any telephone, at anytime during the day while still benefitting from the security provided by Sentry Telecare’s Telephone Check-in and Medical Alert service. If the client does not Self Check-in, we will notify their contact people immediately.

Many Sentry Telecare clients prefer to receive a daily check-in call at a time specified by them. The Early Check-in feature affords the client the opportunity to check-in before the daily call is received. The client can check-in early from any telephone whether it is an unexpected situation or a planned absence that prevents the client from being available to answer the scheduled daily call.

“We provide Telephone Check-in and Medical Alert Service to individuals throughout the United States and Canada”, stated Jon Constable the President of Sentry Telecare. “We fulfill a specific and growing need of seniors and other people who live alone and who want to live independently”.

Contact Information:

Website – www.sentrytelecare.com

Email – info@sentry telecare.com

Telephone – 1-888-280-8717 toll-free

Posted by: Conky | January 30, 2012

Living Alone With Pets and Telecare Service

“Harvie, I am curious about why you subscribed to our Personal Telecare Service”, I asked.

“Well Jon, I own a dog. I’m not concerned about myself, but if a personal health issue arises, I want to make sure my pet is looked after”. It turned out that Harvie is more than a dog owner; he is also a pet rescuer.

The foregoing is not a transcript but rather an accurate representation of my conversation with a current client who subscribed to our service almost five years ago. Whenever the opportunity arises to have a conversation with a new client I try to learn about the client’s needs. I am no longer surprised when I find out that the client’s primary reason for subscribing is a concern for the welfare of a pet.

Let’s acknowledge that pets can be great companions. They bring happiness, comfort, and humor to their companions. Unfortunately pets are not for everyone and careful consideration should be included in the decision before inviting a pet into your home: do your own research and decide independently if a pet is right for you, select a pet that matches a closely as possible your needs, be mindful of the costs associated with owning a pet (e.g. veterinary cost, food, and kennel care if necessary), and the time commitment necessary to give your pet sufficient exercise. To access an exhaustive list of considerations associated with being a responsible dog owner I suggest you visit the American Kennel Club website. If you are considering bringing a cat into your home visit the Pet Product Advisor website to read about considerations that should be taken into account before acquiring a pet cat.

Acquiring a pet can be the beginning of a great love affair, but it is a relationship that carries great responsibility. House pets can be great companions. Before getting one, make sure you will be able to return the compliment.

Whether it is a concern for your pet or yourself Sentry Telecare offers a reliable telephone check-in and medical alert service to people who live alone in the United States and Canada. At $18.50 a month, with absolutely no additional fees and only your existing telephone, our Personal Telecare Service represents very good value. Please visit our website and subscribe today to receive calls immediately. The remainder of the current month is free and we offer a 30 day money back guarantee.

“We will call you every day to make sure you are okay”.

Posted by: Conky | January 26, 2012

Back in Action …

Finally, I am ready to resume blogging.

First, I thank you readers for your very kind comments about the earlier blogs.

I wish I didn’t have excuses for not resuming the blog before now, but in fact the prostate experience took me out of action. The surgery is being followed by hormone ablation therapy, which will happily go on for three to five years. The side effects to date are somewhat noticeable but for now seem to be ameliorated by hard work in the gym five days a week. I would do six or seven days but for the fact that these old bones need a few days of rest.

October and November, on weekdays, had me visiting the Tom Baker Cancer Centre in Calgary for radiation treatments. By the end of the radiation I was pretty much wiped out but the prize is that I am now cancer free, until proven otherwise. Another thank you is in order at this point. The staff of Radiation Unit 2 at the TBCC was exceedingly friendly and at the same time professional throughout the treatment period. My last day of radiation found us in the treatment room doing a “happy dance” in celebration of the end of treatments.

But, for the moment, I have written enough about prostate cancer. I now will concentrate on the very important topic of Caregiving with emphasis on those more than 10 million individuals over the age of sixty-five in North America who live alone. I will, as you would guess, intertwine information about the Personal Telecare Service offered by Sentry Telecare. Happily, during my less active period, our developers were busily at work creating new features and otherwise enhancing the service.

The first new blog will deal with people who live alone with their pets. We have learned from our clients that many of them have pets and are more concerned about the welfare of their pets than they are of themselves. We will announce a new Personal Telecare Service feature following the “Living Alone With Pets” blog; and I will happily blog on from there.

Posted by: Conky | September 20, 2011

PROSTATE AWARENESS – Be early; be proactive; plan.

INCENTIVES?

Early, consistent testing and thus early treatment of prostate disease may help men avoid a some unpleasant urinary tract difficulties and help men avoid sexual dysfunction. Early, consistent testing may also catch prostate cancer at an early stage and therefore allow the patient to avoid extended treatment or an early departure.

PLANS?

At the age of forty years men should, with their personal physician, develop a plan that will find prostate problems early. If older than forty, do not wait for symptoms to become clear. Go directly to your doctor and develop a plan.

EDUCATION?

Be proactive. Learn about the diseases associated with the prostate gland. There are a number of websites that provide  reliable information. These include Johns Hopkins, Sloan-Kettering, and the Mayo Clinic.

READ?

The three-part blog posted by Conky (that is me) is accessible in the Health Matters category of the Sentry Telecare Blog. The three posts are based on research and my personal experience with prostate cancer.

DO NOT WAIT FOR SYMPTOMS TO BECOME EVIDENT. SEE YOUR DOCTOR AND PUT A PLAN IN PLACE TODAY!!!!

“Your system has been a lifesaver for us. My sister gets two check-in calls each day. If she doesn’t answer, or requests help, we can respond with either a visit to her house or with a telephone call. With this service we are never in doubt about her status. This system works because we are alerted even though she may be totally incapacitated and unable to respond. It is foolproof and gives us an incredible sense of security. It has worked for us time and time again.”
~ George S, – Virginia

George S. has been a subscriber to our Personal Telecare Service since 2004. In no uncertain terms his unsolicited testimonial describes the value of the Sentry Telecare daily check  in service. The value resides in the fact that the service is PROACTIVE. It can be scheduled to call one, two, or three times each day to determine the status of the person receiving the call. Whether that person is absolutely fine, conscious but not able to move, disoriented, or unconscious the status of the check-in call recipient will be determined and as necessary, action will be taken. Click here to see how Telecare works.

Living Alone is a Risky Business

We have all heard of situations that resulted in a person being found in perilous circumstances: such as, having slipped and becoming wedged and immobile between the toilet and the bathtub; or stumbling in the kitchen and being unable to move after becoming stuck between two appliances with their arms pinned. You do not have to wait for a chance visit to save you as was the case in these two examples. A Sentry Telecare scheduled check-in call, if unanswered, would have triggered a telephone call to a designated contact person and alerted them to a potential problem. The following is an excerpt from an abstract of an article published a few years ago in the New England Journal of Medicine.

Persons Found In Their Homes Helpless Or Dead – From ABSTRACT

R. Jan Gurley, M.D., Nancy Lum, M.S., Merle Sande, M.D., Bernard Lo, M.D., and Mitchell H. Katz, M.D.

Background

Health care providers and providers of emergency services are sometimes called to help with people who are found alone in their homes either helpless or dead. It is not known who is at risk for being found helpless or dead, what the mortality rates are among those found alive, or how frequently this situation occurs.

Methods

We conducted a population-based study of patients who were found in their homes either helpless or dead. Over 12 weeks, paramedics employed by the city of San Francisco identified 387 such events involving 367 persons. We obtained information on these patients from the emergency-medical-services department or the hospitals to which they were taken and determined their outcomes.

Conclusions

For elderly people who live alone, becoming incapacitated and unable to get help is a common event, which usually marks the end of their ability to live independently. …possibilities for intervention include electronic telephone checks…

Source Information
From the Robert Wood Johnson Clinical Scholars Program, University of California, San Francisco (R.J.G., B.L.); the Department of Public Health, City and County of San Francisco (R.J.G., M.H.K.); the Joint Medical School Program, University of California, San Francisco and Berkeley (N.L.); and the Department of Medicine, San Francisco General Hospital, San Francisco (M.S.).
Address reprint requests to Dr. Gurley at the Department of Public Health, AIDS Office, Suite 500, 25 Van Ness Ave., San Francisco, CA 94102.
 

Conclusion

As pointed out in the full article referenced above: the first 24 hours are critical. Seniors who are found during that period will likely recover and be able to return to their home. For longer periods with no intervention, there is an increasing chance that the person will not be able to resume their earlier independent way of life.

Proactive daily telephone check-in service can mitigate the potential problem!

Posted by: Conky | September 9, 2011

Cancer Patients Aided By Music

Txchnologist - Sponsored By GE

Study Finds Music Therapy Helps Cancer Patients

September 8th, 2011  By Matthew Van Dusen

In Christopher Hitchens’ caustic 2010 essay “Tumortown” about his battle with esophageal cancer the celebrated journalist singles out for scorn those who offered unsolicited advice on miracle cures, soothing tonics and nourishing diets.

The one piece of advice Hitchens’ heeds comes from a Cheyenne-Arapaho friend, who notes that all of her friends who turned to tribal medicine died almost immediately and if anyone offers him the same, he should “move as fast as possible in the opposite direction.”

Hitchens’ essay encapsulates the disdain that many feel for alternative and complementary cancer therapies – which is to say, anything outside of clinical medicine approved by the U.S. Food and Drug Administration or experimental medical treatments. These therapies are, skeptics believe, quackery that will, at best, do nothing and, at worst, hasten your demise.

It may surprise these skeptics, then, that a scientific review published in The Cochrane Reviews in August showed that cancer patients who participated in some form of music therapy reported reduced anxiety and pain.
Joke Bradt, an associate professor at Drexel University in Philadelphia, said she was motivated to do the review to justify the value of music therapies.

“In order for the conventions to appear legitimate, they need to show evidence,” Bradt said.

The evidence (pdf) from 30 studies involving 1,891 participants showed music interventions, in the careful language of such research, may improve patients’ anxiety, pain mood, quality of life and vital signs. The studies evaluated music interventions as a complementary therapy used in conjunction with clinical treatments such as chemotherapy, surgery and radiation therapy.

They looked at music medicine, where recorded music is played for patients, and music therapy, which involves a therapist who engages the patient or plays an instrument in the room. Both showed positive results. Bradt said it was hard to evaluate whether one was better because there weren’t enough studies though she believes that music therapy, which can also engage family members, is clearly better.

It was clear, however, that a patient’s music preference was important to the outcome. Soothing waterfalls sounds or cloying strings wouldn’t help if what the patient really wanted was, say, Kanye West.
“I use music that you like,” said Bradt, who is a music therapist herself. “If it’s heavy metal it’s heavy metal, if it’s hip hop, we play hip hop.”

That’s because the point of music therapy isn’t always to soothe, Bradt said. Sometimes it’s a way of coping with worry about the next treatment or hospital visit.

In her own experience as a therapist, Bradt said she would tell children, “I will not let the doctor or nurse touch you until they sing a song with us.”

Bradt said the findings were consistent with four other reviews she had done of music’s benefit for ventilator patients, those with brain injuries.

“We do note from brain studies that music activates the same pleasure centers in the brain as food does as sex does,” Bradt said. “People just feel better when they listen to music.”

Prostate cancer is the most common cancer in men and the third leading cause of death due to cancer in men.

The three posts dealing with this subject are now available on the Living Alone – RUOK? blog; and are grouped in the blog category Health Matters.

The purpose of the three posts is to increase awareness about the disease, to promote proactivity in the identification and treatment of the prostate cancer, and to increase the lay person’s understanding of this killer.

It seems men generally find that discussion about prostate cancer is difficult. Apparently it is one of those “below the waist” topics often relegated to locker room joking. As a prostate cancer patient, I am qualified to tell you that early detection and treatment  beats the heck out of the alternative. My advice: at the age of 40 all men should consult their family doctor about developing a plan that may best detect cancer in the prostate gland . Do not take  your doctor’s response ”not until you are 50″ for a final answer! With early detection, treatment will likely cure you. The cure of prostate cancer is reduced substantialy once the cancer is outside the prostate gland.

Future posts on this subject will report on new treatments as they become available.

Meditation mantra of the day: “FIND, FRY, DIE” – directed at the cancer cells. I borrowed this in part from Brett Wilson’s Video about  his journey to becoming a “Cancer Graduate”.

Live long and prosper.

 

 

 

Cancer cure is the goal of radical prostatectomy surgery. Unfortunately, despite earlier detection and treatment of Prostate Cancer today, recurrence following surgery is experienced in about 30% of cases. For many men, due to age or the nature of their cancer, treatment may not be required for many years, or ever. When it is determined that further treatment should be undertaken, hormonal therapy is typically the first treatment used. It will kill some cancer cells and will slow the cancer’s progress. But before agreeing to start hormonal therapy “a man should always question his doctor:

  • What exactly are you planning to accomplish with hormonal therapy?
  • Will the cancer-fighting benefits offset the quality-of-life negatives?
  • Will I live longer?

If you are not satisfied with what you hear from your physician, seek a second opinion.” – Jacek Mostwin, M.D., D. Phil., The Johns Hopkins Prostate Library.

How Does This Work?

Based on my readings, I’ll attempt to describe the process. To grow and develop most cancerous prostate cells need a hormone called testosterone. The body produces testosterone. The goal of hormone therapy is to block production of testosterone. When the supply of testosterone is shut off by drugs, tumours generally shrink or regress. Absent testosterone, the prostate cancer may stay in remission for years. Men need to understand, however, that there is no known cure for recurring prostate cancer. Unfortunately the cancer cells that may eventually prove fatal are the hormone-insensitive cells. They continue to grow when testosterone is not present. Current research is making significant advances in developing secondary and even tertiary treatments that do extend patient survival periods. These developments are very positive and give rise to the expectation that a cure will be found.

Nobody said it would be easy.

Hormone therapy can cause significant side effects after several months of treatment. Following the removal of the prostate gland, men with no prostate cancer symptoms should give careful consideration to possible quality of life issues associated with hormone therapy before agreeing to go ahead with the treatment. In other words, if there are no symptoms evident, the anticipated benefits of hormone therapy may not match the negative quality of life issues that result from hormonal therapy. Long-term side effects may include one or as many as all the following:

  • Decrease in mental acuity
  • Loss of muscle mass
  • Decreased energy
  • Loss of sexual function
  • Osteoporosis
  • Depression
  • Anemia
  • Hot flushing episodes

If you undergo hormonal therapy your treatment team will give advice on how to cope with the side effects.

Radiation Therapy Following Radical Prostatectomy

Is radiation therapy a valid treatment if cancer recurs following prostate removal? According to my readings, and discussion with my oncologist, this question is not easily answered. “The problem is that a rising PSA doesn’t distinguish between incurable systemic disease versus curable, local-only disease.” – H. Ballentine Carter, M.D., The Johns Hopkins Prostate Library.

Using radiation therapy following prostate removal is subject to many considerations. Whether or not to go ahead with this treatment will depend on conclusions agreed to by the medical team and the patient.

Wrapping Up

The purposes of this three-part blog include: generating increased awareness of prostate cancer; promotion of  patient proactivity with respect to testing and treatment; and increasing the general level of the understanding of prostate cancer by laymen. It is not the purpose of this blog to replace your doctor or your treatment team. A great deal of expertise is available from the medical community. The task of the patient is to take full advantage of this expertise.

Status Report

I’ll conclude with a quick status report. I am being treated as though my cancer has recurred. The post-surgery biopsy of my prostate gland and of lymph nodes, removed during surgery, indicated that the cancer has escaped the prostate capsule, but is localized. I am in hormone therapy and will undergo radiation therapy soon. The hormone therapy will continue during and following radiation. At this point I feel great. I exercise regularly and have resumed running following three months away from the paths and trails. I follow the diet recommended by my treatment team and generally have a very positive outlook with respect to the future.

Good luck to all of you men with or without prostate cancer. And a big group hug to all the current and future caregivers whether helping a prostate cancer patient or providing a service too any person requiring your help.

Qigong – The art and science of Chinese energy healing

One further note about my personal approach to life and cancer. I am a self-taught Qigong practitioner. My reference material for almost 15 years has been the book “The Way of Qigong” by Professor Kenneth S. Cohen. Professor Cohen’s website is available to introduce you to the benefits available from the practice of Qigong, including its potential in the prevention and treatment of cancer.

Comments: If you have a prostate related story you wish to share or have information to pass on, please comment away.

Read Part One“Testing For Prostate Cancer”Category: Health Matters

Read Part Two “You’ve Got Prostate Cancer”Category: – Health Matters

Posted by: Conky | May 12, 2011

It’s All About Your Health – isn’t it?

We all know that our health matters; and we also know about a number of health matters we should be aware. A business associate, Jack Kahn, saw this as a business opportunity and developed a syndicated two-minute daily radio feature – “It’s a Matter of Your Health”. It is a medical health feature covering a range of health topics heard daily on radio stations across the United States. Jack became so involved in the topic and the feedback from listeners that he has gone on to write a book “Doctors Ain’t What They Used to Be” which will soon be released. I’ve reviewed this book, the first of a series of six he will publish, and came away with useful information, not the least of which is to be proactive when it is about your health.

What does being proactive about your health mean? Of course it can mean a lot of things. How about “avoiding medical errors” for starters? After all, it is your good health, quality of life, and well-being that you should be concerned about. General advice: when dealing with any part of the medical or caregiving community, do not be timid, afraid to ask, or be concerned about offending anyone. For example, before you visit the doctor’s office make a list of questions that address your concerns. Don’t be embarrassed about pulling out the list and reading the questions to the doctor. We tend to be restrained or overwhelmed when we are sitting with a doctor. The list will help you keep focused.

I learned that not being proactive about your health can be harmful.  Several years ago I suddenly developed a sun sensitivity problem. It took only minutes before my arms and face would blister when exposed to the sun. An ointment prescribed by the doctor controlled the problem and sun screens, or long sleeve shirts, kept it under control. But the skin condition worsened and it wouldn’t go away. I visited the doctor about the issue and received  many prescription refills.  Finally I was referred to a dermatologist (not the first). He walked into the examination room, took one look at my face, and said “you’re allergic to your prescription”. How much time had passed since the problem presented itself? Twenty-five years. Yes – 25!! After a month of treatment the problem was gone. Looking back it is clear that I should have been more proactive in seeking a solution.

Posted by: Conky | May 12, 2011

R.U.O.K.?

Are you okay? What a great question to ask. How can it ever be wrong to enquire after another person’s health, state of mind, or status? The question is not always well received, as you likely know, despite the good intentions. But it is worth asking regardless!

R.U.O.K. has become well established acronym that used to describe a check-in service, automated or voice telephone calls, provided by many police departments and sheriff’s offices to their communities. These RUOK programs are often offered as a free service to individuals that satisfy the parameters set out by their service provider. Funding of the programs is often from internal sources or is sponsored by individuals and organizations in the community.

If your community does not offer this service, it could be worth your while to see if RUOK service is a a possibility for your area. Experience with a Sentry Telecare client that provides our service through their program has shown that the service has served its purpose more than once.

Personally, when I am asked the question, – Are you okay? – I try hard to remember that it is an expression of concern for my well-being.  Notice – I said try!

Posted by: Conky | May 12, 2011

Live Independently … Recognize the Risks

Even though I lived alone for several years, I hadn’t given a great deal of thought to what that could mean until I came across an article in the New England Journal of Medicine. Following is an Abstract of the article:

“Persons Found In Their Homes Helpless Or Dead”

R. Jan Gurley, M.D., Nancy Lum, M.S., Merle Sande, M.D., Bernard Lo, M.D., and Mitchell H. Katz, M.D. ABSTRACT

Background

Health care providers and providers of emergency services are sometimes called to help with people who are found alone in their homes either helpless or dead. It is not known who is at risk for being found helpless or dead, what the mortality rates are among those found alive, or how frequently this situation occurs.

Methods

We conducted a population-based study of patients who were found in their homes either helpless or dead. Over 12 weeks, paramedics employed by the city of San Francisco identified 387 such events involving 367 persons. We obtained information on these patients from the emergency-medical-services department or the hospitals to which they were taken and determined their outcomes.

Results

The median age of the persons found helpless or dead was 73 years; 51 percent were women. The frequency of such incidents increased sharply with age, from a rate of 3 per 1000 per year among those 60 to 64 years of age to 27 per 1000 per year among those 85 years of age or older. The highest rate was among men 85 years and older who were living alone (123 per 1000 per year). In 23 percent of the cases, the person was found dead; an additional 5 percent died in the hospital. Thus, total mortality was 28 percent. Of the patients found alive, 62 percent were admitted to the hospital. The average hospital stay was eight days, and 52 percent of those admitted required intensive care. Of the survivors, 62 percent were unable to return to living independently. The total mortality was 67 percent for patients who were estimated to have been helpless for more than 72 hours, as compared with 12 percent for those who had been helpless for less than 1 hour.

Conclusions

For elderly people who live alone, becoming incapacitated and unable to get help is a common event, which usually marks the end of their ability to live independently.

Source Information

From the Robert Wood Johnson Clinical Scholars Program, University of California, San Francisco (R.J.G., B.L.); the Department of Public Health, City and County of San Francisco (R.J.G., M.H.K.); the Joint Medical School Program, University of California, San Francisco and Berkeley (N.L.); and the Department of Medicine, San Francisco General Hospital, San Francisco (M.S.).

Address reprint requests to Dr. Gurley at the Department of Public Health, AIDS Office, Suite 500, 25 Van Ness Ave., San Francisco, CA 94102.

The article was seminal in the founding of Sentry Telecare, Inc. In the body of the piece the authors actually stated that the need for a telephone check-in service to check on people living alone was clear.

There are different methods of checking to see if people are okay or of giving a person an opportunity to send for help. Readers of this blog will find it interesting to learn what you and others think of the different solutions. What do you think?

Posted by: Conky | May 13, 2011

Thank You to All of You Caregivers

I was a caregiver. Unfortunately it was for too short a period before our father passed away. The term “caregiver” (or “carer”) was not in my vocabulary, at least not in the way the term is defined today. So how is caregiver defined? From Wikipedia, a widely accepted official definition of a carer/caregiver is someone whose life is in some way restricted by the need to be responsible for the care of someone who is mentally ill, mentally handicapped, physically disabled or whose health is impaired by sickness or old age.

According to a November, 2007 survey on family caregiving, conducted by Caring Today :

  • Sixty percent of the caregivers called the experience “very or extremely rewarding,” a 50% jump over the number of caregivers who thought in advance they would find the experience “very or extremely rewarding.” Nearly 80% (78.8%) percent of the caregivers found the experience to be at least “rewarding,” an increase of more than one-third from initial expectation.
  • The majority of caregivers-nearly 54%-formed a stronger bond with the patient during the time they were together.
  • Almost 60% of the respondents reported an improvement in the quality of their relationship with the person for whom they cared. By contrast, fewer than 10% said that their relationship got worse during the time they were caregivers.
  • Social activities of the caregiver tend to diminish. The diminished social activities tend to be replaced with an increased quality of relationship with the care recipient.
  • More than 2/3 of all caregivers (68.7%) said they enjoy the tasks associated with caregiving. Prior to assuming the role, fewer than half (45.5%) thought they would enjoy caregiving.
  • The amount of satisfaction with caregiving is directly related to the type of disease from which the care recipient suffers. Caregivers of depression sufferers, cancer and cardiac disease have more difficulty than those caring for patients who suffer from diabetes, high blood pressure and arthritis.

Other information about US caregivers from the US Department of Health and Human Services:

  • More than 50 million people give care to a chronically ill, disabled or aged family member or friend during any given year.
  • 30% of family caregivers caring for seniors are themselves aged 65 or over; another 15% are between the ages of 45 to 54.

Well I’m impressed. Despite the sacrifices caregivers largely seem to find that caregiving is a rewarding experience. Fortunately a growing caregiving industry has developed as awareness of the need has increased and the aging population has grown. Services provided by the organizations and companies that offer services often are important and necessary as they mitigate the time commitment of some caregivers.

While a list of Caregiver Resources could be included in this blog, I have purposefully not done so. My concern is that given the large number of excellent sources some would inadvertently be missed. Suggestion: search the internet using the term “caregiver”. The amount of material that is available is surprising. You are not by yourself as a caregiver.

You may have experiences to share, caregiving problems you need help with, or information to share. Please leave a comment and get a discussion underway.

Posted by: Conky | May 20, 2011

Living Alone with Pets

First let’s acknowledge that pets can be great companions. They bring happiness, comfort, and humor to their companions. Unfortunately pets are not for everyone and careful consideration should be included in the decision before inviting a pet into your home.

Estimates by Statistics Canada and the American Veterinary Medical Association, published in “2007 U.S. Pet Ownership & Demographics Sourcebook“, show that there are more than 160 million dog and cat pets in the United States and Canada. And that is before adding  birds, horses and exotic pets  to the total. Did you know?: In 2006, nearly half of pet owners, or 49.7%, considered their pets to be family members.

Why do people form such strong bonds with their pet? While I like all animals, and they seem to like me, my experience has been mostly with pet dogs. The picture above is of Jack the Lab – a truly great friend. Healthy dogs are adept at mirroring their companions. They tend to reflect your state of mind and in so doing they can add to your happiness or be compassionate when you are out of sorts. Let me share an observation. Many years ago my father and I, with Jet the Lab, spent valuable time together hunting upland and migratory birds. The only training Jet received was from a friend and me. While he was a puppy we exposed Jet to his wonderful nose by dragging and then hiding bird wings under leaves. It did not take long for Jet to catch on and retrieve the hidden prize. That’s it! Otherwise Jet was a household pet, a beloved member of our family. Somehow, through the magic of dog understanding, he came to know what the goal of the hunt was. Jet became so good that more than once my father received cash offers for him while hunting. By contrast I listened to friends describe their frustration with their expensive hunting dogs, that had been professionally trained, and did not perform very well in the field. I was not surprised to learn that the under achieving dogs were not a part of their family. The dogs lived in a kennel or in a dog run. What made the difference? Right or wrong I concluded that  it was our very close relationship with Jet.

Animals bring out our nurturing instinct. They also make us feel safe and unconditionally accepted. We can just be ourselves around our pets. Research has shown that heart attack victims who have pets live longer. Even watching tropical fish in an aquarium may lower blood pressure, at least temporarily. Pets, particularly dogs, can keep you active by taking you for a walk, and increase your social interaction with other people who are also out for a walk with their dog.

Considerations to take into account before bringing a pet into your home: costs, including veterinarian bills, and arranging for care of the pet if you travel. You are the one who will live with the pet so you decide, independently, if having a pet is right for you.

What gave rise to this item? Some clients of the Sentry Telecare daily check-in service who, upon being asked why they had subscribed to the service, responded with some very personal reasons that related specifically to the welfare of their pets. I did not expect the answers; but the reasons were easily understandable.

We would love to learn about experiences of people with their pets. Leave  a comment and share them with other readers.

Posted by: Conky | May 24, 2011

Gluten-Free May Be For You

Gluten-free may be for you; but for me it is essential. I think it is time that the subject of gluten intolerance becomes more available to the public. Let’s be clear about it – for some it is fashionable to be gluten-free, for others it is advisable, and for people with Celiac Disease it can be critical.

From Wikipedia: Gluten (from Latin glutenglue“) is a protein composite that appears in foods processed from wheat and related species, including barley and rye. It gives elasticity to dough, helping it to rise and to keep its shape, and often giving the final product a chewy texture.

The most obvious examples of products that contain gluten are breads, breakfast cereals, and anything using flour milled from wheat, barley, or rye. If you read labels, and we “celiacs” do, you likely will be surprised to learn just how many prepared food products include gluten. Examples of sources of gluten: some prepared mustards and soya sauces, wieners and hamburgers that include fillers, beer (gluten-free beers are available and distilled products like whiskey are gluten-free), malt vinegar, pasta, salad dressings, licorice, and etc., etc.

When our digestive systems behave, that process isn’t something we ever think about. When it acts up we become aware, sometimes acutely aware. The symptoms may range from very clear to subtle. I have always been “healthy”. I look after myself through diet and exercise. About ten years ago, as is normal to annual physicals, from a blood test I was found to be a little low on iron. The doctor told me to top up my iron using iron pills, which dutifully I did (I thought). Two years ago my doctor decided that it would be appropriate for me to go through a variety of tests to establish a health base line and to look for early indicators of health situations. One of the prescribed tests was a colonoscopy, that is an examination of the large intestine. The specialist undertaking this examination noted I was low on iron (presumably still low) and set about finding out why. From an endoscopy (examination of the small intestine) he discovered that I have Celiac Disease. In my case, due to the intestinal condition he identified, my body had stopped absorbing iron. With an initial boost from iron pills and  strict adherence to a gluten-free diet,  my iron levels have returned to normal.

Now the interesting part. Right up to the diagnosis there were no clues that I was on the verge of becoming clinically anemic. I felt great, exercised regularly, ate what I wanted and drank a few beers occasionally. Now, I am very careful about what I eat and drink and am benefiting from the increasing attention of the food industry to the market for gluten-free foods. See Gluten-Free Foods Paying Off Big  to get a sense of this growing awareness.

Gluten intolerance goes beyond Celiac Disease. Some people are simply intolerant. I’m not overly surprised that this might be so. After all domestic varieties of the offending grains (wheat, barley and rye) have only been around for some 5,000 to 10,000 years and our digestive tracts have evolved for a million or more years.

Food intolerances are generally difficult to find as the range of symptoms varies greatly. Your family doctor is a good place to seek medical advice with respect to your valuable digestive processes. For general information about Celiac Disease a source I have found to be useful is The University of Chicago – Celiac Disease Center .

And remember – be proactive about your health, it matters.

Posted by: Conky | August 30, 2011

Part One – “Testing for Prostate Cancer”

Introduction

Prostate Cancer is the most common cancer in men and the third leading cause of death due to cancer in men. I have prostate cancer. When I decided to do a post on this subject it was not my intention to be autobiographical. But I realized that the information I want to convey is far more meaningful if I include personal experiences with the disease.

This is a three-part blog: Part One – “Testing and Monitoring”; Part Two – “You’ve Got Prostate Cancer!”; and Part Three – “Advanced Prostate Cancer”.

Please note that I am not a medical practitioner and am not professionally qualified in the field of prostate cancer. However, I am far more knowledgeable today than I was when this journey began. Had I known a year or more ago what I do now, and been proactive, my situation today would likely have been somewhat different.

“Testing For Prostate Cancer”

  • “There is no PSA level below which physicians can reassure a man that he does not have prostate cancer. Therefore, it is not possible to define a “normal” level.”Johns Hopkins Health Alerts
  • The American and Canadian cancer societies recommend that men not at high risk begin discussing prostate cancer screening with their doctor at age 50. (Depending on family history or race earlier testing may be recommended)
  • “For a 70-year-old man with no family history of prostate cancer, a doctor might point out that even if he is diagnosed with prostate cancer, physicians might recommend active surveillance and not treatment” – American Cancer Society

Where did these age parameters come from? Well I don’t know but assume that the parameters apply to the majority of the population. In other words from statistics, specifically averages. Well averages are just averages and include men at greater risk and those at much less risk of having prostate cancer. What do you suppose Brett Wilson, who was found to have prostate cancer at age 43 and later advanced prostate cancer, thinks about those parameters? Brett is a self-anointed “Cancer Graduate”. Recognizing that the cancer may return he stated “… I can’t live worrying about it. I could be hit by a bus before the cancer comes back.” You can listen to him describe his journey by visiting Brett’s Video (highly recommended) and learning how he feels about when testing should begin.

I can tell you what I think of the older-end of the age bracket recommendation noted above. Not much! My age is 69. Despite receiving a green light following PSA tests during the fall of 2010, early in 2011 a PSA test result was suddenly elevated. My family doctor referred me to a urologist and he recommended a biopsy. The biopsy results were alarming and a prostate removal by surgery was quickly scheduled. (Note “quickly” and see Part Two (when posted) to learn what I believe should have happened).

What Should Men Do?

Find the cancer early! Regardless of age the most important factor affecting survival rates is early detection of prostate cancer. Men, in my opinion, should start discussing prostate cancer with their family doctor at the age of 40. Establish a PSA baseline (from a simple blood test) at that time and with the doctor work up a program for later PSA testing and digital rectal examinations (“DRE”). Make sure you discuss your annual PSA test results with your doctor by comparing your results to your earlier baseline. Important to know – not all prostate cancers are the same. Prostate cancer cells are typically graded on a scale of 1 to 5; with 5 being the most aggressive rating. (Learn more by visiting Gleason Score). While the more aggressive prostate cancer is not common, the mere possibility of its occurrence dictates vigilance between PSA tests. A partial list of symptoms follows. DO NOT IGNORE YOUR SYMPTOMS – see the doctor but do not panic. As a man gets older the prostate may enlarge with symptoms similar to prostate cancer. Your doctor will determine the cause of the symptoms.

Signs and symptoms for prostate cancer include:

  • need to urinate often, especially at night
  • intense need to urinate (urgency)
  • difficulty in starting or stopping the urine flow
  • inability to urinate
  • weak, decreased or interrupted urine stream
  • a sense of incompletely emptying the bladder
  • burning or pain during urination
  • blood in the urine or semen
  • painful ejaculation
  • erectile dysfunction

DO NOT IGNORE YOUR SYMPTOMS at any age. See your family doctor. Both PSA and DRE testing are important because prostate cancer can occur without elevated PSA levels or any symptoms being evident.

Read Part Two“You’ve Got Prostate Cancer”Category: Health Matters

Read Part Three“Advanced Prostate Cancer” (Category: Health Matters)

 

Posted by: Conky | September 1, 2011

Part Two – “You’ve Got Prostate Cancer”

Whether over the phone or in the doctor’s office it is really hard to put a positive spin on this statement: “You’ve got Prostate Cancer.” But don’t panic. It is vitally important to take the time to make sure you fully understand your treatment options. The normal path to this pronouncement is: from your family doctor (who will have ordered a PSA test and/or performed DRE); to a urologist who will further examine you and recommend (if necessary) a biopsy; and back to the urologist who may give you the “not so good news”.

This is a critical point in your decision-making process. When you meet with the urologist I recommend that you be accompanied by someone you trust and respect. The urologist will likely go over the results of your biopsy, describe the available treatments, and may recommend a treatment. You may then be asked to select a treatment. “Are you kidding”? No I’m not. It was left to me to figure out what was the best treatment option. I had no knowledge of how to interpret the results of my biopsy and had never heard of the Gleason Score (See Part One). All I could think was “get rid of the cancer”, and as soon as possible. So when asked what I wanted to do I quickly said “surgery please”. This decision should not have been made so quickly. I should not have attended the appointment alone.

My experience should not have happened the way it did. My urologist did not recommend or even suggest that I seek a second opinion about treatment options. Rather, right at that time we agreed on a date for a radical prostatectomy. What should have happened? I should have taken the biopsy information received from the urologist to my family doctor and asked him to recommend an oncologist who could review the diagnostic information and either agree with the surgery decision, or suggest a different course of treatment.

It seems clear that before deciding on a treatment option, a very important question must be answered: Has the cancer spread outside of the prostate capsule? Why is this important? Surgery will not remove the cancer that has “escaped the gland”; because, for example, radiation can kill the cancer in the gland and can then target cancer cells beyond the prostate gland. (Note – other treatment choices are also available).The information obtained from the first biopsy may suggest the cancer is limited to the prostate or suggest it is more widely spread. To get a more accurate assessment I recommend that, with a physician, you prepare a Partin Table. The result, while not 100% definitive, will show whether it is likely that your cancer has spread beyond the prostate gland. My post-surgery investigation leads me to believe that the better choice for me may have been radiation therapy.

Today there is good reason to be more optimistic about successful outcomes than in the past. Compared to current experience, as recently as twenty years ago many more men diagnosed with prostate cancer had tumours that extended beyond the prostate gland. With improved awareness, and increased use of testing (PSA and DRE), much earlier detection of prostate cancer has reduced these occurrences such that the disease can often be cured with local treatments directed at only the prostate.

EARLY DETECTION OF PROSTATE CANCER IS CRITICALLY IMPORTANT.

While initial success rates have improved due to increased awareness and earlier detection of prostate cancer, the literature indicates that about 30% of men who had their prostate removed or irradiated experienced a detectable PSA level within 10 years of their first treatment. Dependent upon age and the nature of the cancer many of these men may not need further treatment for years or possibly ever.

Be proactive! Get a second opinion. But do not unnecessarily delay treatment.

Read Part One“Testing For Prostate Cancer” – Category: Health Matters

Read Part Three“Advanced Prostate Cancer”Category: Health Matters

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